The Marfan Foundation Walk for Victory

The Marfan Foundation provides a community for those affected with a rare connective tissue condition, providing medical advice, mental health support, education about treatments, medications, and hope for those affected. We gather health professional experts from around the world to further science and research, and provide opportunities for our community to directly interact with these experts through conferences, webinars, and symposia.

The Marfan Foundation is a nonprofit organization that saves and improves lives while creating community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness so everyone with genetic aortic and vascular conditions can live their best life.